<span class="center-menu">← <small>PREVIOUS: [[7.2. Impact on daily life and functioning]]</small> | <small>NEXT: [[8. Resources, Support, and Specialist Centers]]</small> →</span> -------- ##### Summary >[!Summary] >- knowing your own bodily needs and “emergency treatment” was an important aspect of the self-management toolkit, which included salt, water, compression stockings and in some cases, IV fluids[[#^1]] >- planning for events and back-up plans, along with significant others being flexible in changing plans in accordance with symptoms. there's little room for spontaneity, thus making it 'impossible' to plan ahead without the “toolkit” being in place[[#^2]] >- flexibility in work and study, and understanding from employers and supervisors also helped participants to continue their vocations[[#^3]] >- knowing the own boundaries is a central tenet of the “self-management toolkit”, along with being guided by symptoms in order to avoid “pay-back” later[[#^4]] >- control and flexibility over work or social activities permitted better planning to suit own needs, which included being adaptable to any changes at short notice, along with resourceful ness and resilience[[#^5]] -------- >*“Knowing your own bodily needs and “emergency treatment” was an important aspect of the self-management toolkit, which included salt, water, compression stockings and in some cases, IV fluids.”* <small>([[Knoop-2023]], [p. 5](zotero://open-pdf/library/items/P2VFKVHY?page=5&annotation=7PGWFFKA))</small>^1 >*“One of the most important aspects of the self-management toolkit seemed to be planning for events and back-up plans, along with significant others being flexible in changing plans in accordance with their symptoms. <small>([p. 5](zotero://open-pdf/library/items/P2VFKVHY?page=5&annotation=K2KMY5WA))</small> [...] they talked about having little room for spontaneity, thus making impossible to plan ahead without their “toolkit” being in place:”* <small>([[Knoop-2023]], [p. 5](zotero://open-pdf/library/items/P2VFKVHY?page=5&annotation=7BGE5A8U))</small>^2 >*“Flexibility in work and study, and understanding from employers and supervisors also helped participants to continue their vocations. However, there seemed to be a struggle between wanting to disclose their POTS and the worry about being judged in terms of the legitimacy of their condition.”* <small>([[Knoop-2023]], [p. 5](zotero://open-pdf/library/items/P2VFKVHY?page=5&annotation=EKUHB66A))</small>^3 >*“Knowing their own boundaries was a central tenet of the “selfmanagement toolkit”, along with being guided by symptoms in order to avoid “pay-back” later.”* <small>([[Knoop-2023]], [p. 5](zotero://open-pdf/library/items/P2VFKVHY?page=5&annotation=MZVVNRGE))</small>^4 >*“control and flexibility over work or social activities permitted better planning to suit own needs, which included being adaptable to any changes at short notice, along with resourceful ness and resilience.”* <small>([[Knoop-2023]], [p. 7](zotero://open-pdf/library/items/P2VFKVHY?page=7&annotation=RMF32BLH))</small>^5